July 1, 2009

  • Chemo and Pain Observation

    Last night was sure an unexpected night and a very LOOOONG one for me.  I took some extra strength Tylenol yesterday morning and still had a few body aches.  So, when the aches became a little more prominent and more like "pains" in the afternoon, I took 2 pain pills, which totally alleviated the pain.  Yay, for pain pills that work.  Right?

    Marie stayed here while JoAnn and Jesse took Rissy to the doctor to check on her ear ache.  She only has an infection in one ear and no sinus problems, so the doctor thought it most likely was swimming pool bacteria.  An antibiotic and anesthetic medication were prescribed for her.  She won't be going to Stephanie's house this week, since what they do all day is swim and she can't go in the water until her ear problem clears up.

                              
                                                         Annamarie, Rissy, and JanaLyn

    Marie and I had such a nice visit while Jesse and JoAnn were gone.  I really enjoy her company.  She told me about the successful trip to the dog park earlier that day.  She even had pictures on her phone of Sushi in the water!  She said Sushi was a little apprehensive at first when she saw all the dogs in one place, but quickly came to Marie when Marie called her.  Sushi and Zoe slept in the den while Marie and I talked.

    After Jesse came home and Marie left, I began to feel worse.  I took a bath and put on a clean gown and climbed into bed to watch the news.  I took my temperature and found I had a low grade fever.  I'm supposed to do what activities I can, when I can, and then rest when I can do no more.  I thought I had done that, but maybe I over did it.  The neuropathy in my left knee began to radiate, painfully to my upper thigh.

                                  
                                         Pictures turned out red this time - I have no idea WHY???!!!!

    Needless to say, there went my plans for making a chicken chef salad for dinner for my family.  Jesse ran to the corner and got cheap Tuesday night burgers.  I could have cared less about I eating, but KNEW I needed to eat because of taking the pain pills and not wanting to create an upset stomach.  I ate dinner in bed.  So much for being up and around.

                                  
                                 A baby pool toy from the old days when the girls were little.  I don't know
                                 how it ended up at this house.  I found it outside by the pool this morning!

    The pain continued to get worse.  I ended up with ice packs on my left upper leg and more pain medication.  And, of all things, a mouth sore that came up just as quickly as the pain came upon me that evening.  The mouth sore made it almost impossible for me to swallow.  My mouth was bone dry and saliva or small sips of water hurt intensely.  The downside of the great pain medication is that it dries up my mouth.  Life is always about tradeoffs, isn't it?!!

                              
                                 (Time to clean the pool and move it to a more shady place - YUCK!)

    Stephanie was here with JanaLyn (to do laundry and spend the night) and I really wasn't able to visit with her.  She was sweet and helped me the best she could, JoAnn saw to it that I got the correct medication at the correct time.  Jesse hovered helplessly, telling me he was sorry I was hurting so much.  All I did was moan from the pain.

    I fell asleep around 11pm, or so, and woke up around 3-something in the morning.  I tossed and turned this morning, but at least the pain had considerably subsided.  I dozed a bit and got up before 7am.  Jesse was already gone, so I sat with my coffee in the den - all alone - wondering about all this pain and the weird side effects.

            

    This morning, I walked into the backyard to get some fresh air and saw our crepe myrtle plants (the neighbor's and my own) FINALLY starting to bloom.  They are so beautiful when they are full of flowers and they will stay that way well into the fall season.  She has two colors and I have a third color that is different from hers.  It really makes our backyards pretty.

                                        

    Jesse wants me to take it easy today.  He thinks I am doing too much after my chemo sessions.  He thinks my activity is eating away at my remaining good blood cells and I should be resting more.  Resting?  I feel like all I do is rest AND take it easy.  Maybe I'm getting antsy and impatient with the last of my chemo therapy.  I'm VERY afraid of growing weak in my muscles due to inactivity, and I KNOW I'm already dumb in the brain from lack of stimulation! 

    I feel like I need to move around more and Jesse thinks differently. 

    What is the right thing to do?  Do I rest and do "next to nothing" to let the new blood cells increase; or, do I do things to keep moving, feel stimulated, and feel useful??? 

    I'm clueless!!!

                                       
                                                            (Smiley eyes - on cue!)

    It's such a weird thing - cancer and chemo drugs.  It takes its own path and what it does to your body is whatever it wants to do and however it wants to manifest itself.  With me, the reaction to chemo and my cells repairing themselves is never the same way twice.  What happened last time may never happened again.  What I think I can expect, doesn't come to pass. 

                          
                                   (Annamarie practicing her reading with Auntie JoJo)

    Last night, I had these horrendous sores on the side of my tongue and under my tongue.  This morning, they are completely gone.  The pain shooting in my leg (remember, *this* is the neuropathy problem they warned me would happen in my *hands and feet* - but, it has hit ME in the one leg!!!) was just awful last night and is nothing more than a little tender or bruised feeling today.

                              

    How can something be so exaggerated but 12 hours later be minuscule???  The human body is an amazing thing and I find it fascinating . . . but, admittedly, I'm clueless as to what is going on or what to expect next  (beside being healed, of course).

    I have such a curious mind, I think this is bothering me because I can't figure out what my body is doing to repair itself and what I can do to help it.  I'm beginning to think I can do nothing and the ride is a roller coaster ride - never knowing what lies around the next bend in the road.

                                 

    Well, thankfully, I'm feeling much better today (a bit sleepy!!!) and I'm not uncomfortable.  I guess that's the positive thing and the thing on which I'll concentrate . . . . until I figure out if I can sit in the den or should stay in bed today!!!

    Be Blessed  ~

Comments (9)

  • Enjoy a captivating book in your den -- that's my vote :) Praying you do have a blessed, peaceful, relatively pain-free day today!

  • The girls are getting so brown! I wish I had the answers for all these woes. I wish you were able to do all the things you want to do! I think it is important to move to keep your circulation strong, but just not to overdo. That's what the doctors say, right? You are almost at the end of the chemo, and hopefully then you can really start getting better.

  • It is easy to say, "This too shall pass", but to live it, wait and endure it is a totally different story. I am praying for you.

  • We never did get our pool set up this summer.  I think we're just gonna hit up Walmart for a little something they can just splash around (or sit) in to cool off.  We want to totally redo our rock bed (where the pool sits - the only level ish spot in the yard) & the funds (or inclination) just isn't there this summer.

    Do you have any small weights you can work your arms w/ while resting in bed?  Even a couple of cans of food will work.  Do a lot of pointing & flexing of your feet.  Little things like that might not wear you out (for Jesse's sake), but will make you feel like you're doing something productive instead of just slugging along.  Just a thought....  ((((HUGS))))

  • Hi cherylyn,   I enjoy reading your post.   I was wondering if you could post the recipe for the bars that had carmel and choc/ chips on top???  They looked so yummy.   I love to try new recipes.  Thanks and take care of yourself!!   You can put it on here or you can email  at auntdiane59@juno.com

  • Well I don't agree with your brain being dumb!! Reading this I felt like I was going through the night with you! That takes quite a bit of "smarts" to articulate in such a vivid way. I also have to say--feeling like I've been going through this with you--I can't wait till it's done and we are well again!!

    I know, I know--all in God's time. This has been quite the journey for you. I'm learning a lot from you about appreciating the small things and how family pulls together. God Bless you and heal you~with love and prayers~Dawne

  • I agree the girls are getting so brown!
    I vote take it easy!
    So sorry you are having pain.
    I have been waiting until I could go to Joanns Fabrics and buy some soft fabric to make you some more head covers from, before to send your box. But have had to wait until our finances catch up with our expenses. And no he won't let me sew anything right now! I know I can make extra money that way but he doesn't want me to because I don't make enough to compensate being tied to the sewing machine! Sigh! I miss it.
    Praying the pain stays away tonight.
    Tina

  • @Aunt_Di - 

    It was a recipe on a box of caramel cake. It has already been dumped in the big trash can. I think I added 2 eggs, 1 stick of butter, 1/2 cut brown sugar and a cup of water to the cake mix, then mixed in 2/3 bag of chocolate chips. Spread it in a 9x13" pan and bake it for 30-ish minutes at 375 degrees. Then, when cooled, frosted it with caramel frosting and sprinkled the rest of the chocolate chips and some ground pecans on top.

    That's the most I can remember and I wish I had written it down, in case the next box of cake mix doesn't have that recipe!

  • I know you will be so grateful when this season is past you. I pray for some special refreshment in your day today.

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