June 16, 2009
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Really Rough Weekend
This wasn't the best of weekends for me except for one thing . . . my friend Lori K came to visit me on Sunday afternoon. We sat together on my bed and she even held my hand for the longest time. She knows exactly how to make me feel better. Well, the truth is, her presence makes me feel better - no matter what she does or doesn't do.
(The next time I make these, I'll put them in the frig before stacking them!)I had a HORRIBLE time with bone pain and now understand why they give you Percocet for pain after chemo. Boy oh boy! They've warned me about bone pain (after the shot they give you the next day to build up your white cell count) and I've experienced hand, feet, wrist, & ankle pain . . . but NOT bad enough to use much Percocet.
Apparently, the new chemo drug mixed with the "next day shot" caused me an experience that will last a lifetime (the reason I typed nothing yesterday). My hips, sacrum, pelvic bones, and upper leg bones hurt like when you are in labor. I'm talking "natural childbirth labor" and not "epidural labor" . . . When I told the nurse my serious comparison to labor and that on a scale from 1 - 10 I was exeriencing a "10 pain", she took me VERY seriously and told the doctor.
The pain started Friday night and I went without sleep. Saturday I could barely focus and Saturday night was more of the same. At least when you are in labor you know there is an expected end and it will be all worthwhile when that baby arrives. Can't say the same for this.
Lori (from Ohio) came to visit and, while she was here, my chills stopped, as did the pain. Actually I was sweating. I had a lovely visit with her and we exchanged birthday gifts - a tradition we've established for many years. After she left, I became VERY chilled (again) with my teeth chattering. It continued through Sunday night. I called the "nurse on call" around 11pm Sunday night because I began to break out in hives on my lower legs. When I took my temperature, I found my fever was over 100 degrees (they tell you to call when it's more than 100.5), which is quite high for me with a normal temp of 98.0 and the fact I don't usually run a fever unless I'm VERY sick.
The on call nurse recommended I try Benadryl to help me sleep, take the nausea away when I took her recommended TWO Percocet pills, AND it would help the hives.
Another very long night. By morning (yesterday - Monday) I called my doctor's nurse to tell her how much I was hurting, to report my fever that kept fluctuating, and the hives that were spreading up behind my upper legs. It took her 4 hours to call me back and, through tears, I was sure she had forgotten me.
After she DID call back, and heard me doing labor breathing while the shooting pains ravaged my body, she said she felt the fever and hives were due to the intensely high level of pain I was experiencing. She prescribed Morphine and the pain FINALLY subsided.
I feel much better today, but part of my upper left leg has gone numb (like Lidocaine has been placed on my skin). They warned me about my hands and feet tingling and going numb, so I guess that's what my leg is about. Leave it to me to experience foot and hand numbness in my upper leg (rolling eyes!) AND, the nurse said I could very well experience this same intense pain with each chemo treatment. Yippeee!
Please pray for me that this pain stays gone and that I can manage it in the future with the two pain drugs. I have a pretty high pain threshold and so you KNOW it was bad if I agreed to take Morphine. Morphine scares the pants off of me and I can assure you, I would never take it for a little amount of pain.
Stephanie's birthday was lovely. I'll start sharing pictures each day this week. Her "biggest thing" she wanted to do for her birthday was play with Tango, our cockatiel.
Last minute I made a stack of cupcakes into a mini birthday cake and she loved it and her gifts from her sisters.
I think I had better go rest. Just stopping by to show off pictures and say, "hey!"
Be Blessed ~
Comments (17)
(((HUGS))) I'm sorry it's been so bad this time. Hope you feel better each & every minute!
Glad you got to see Lori & had a great visit w/ her.
continuing to pray for you dear friend~ i know this is such a hard time. wish i were closer to help do something... just know you're in my thoughts and i care about what you're going through.
much love~
I am praying for you. Thank you for your comment on my site.
I am so sorry that this has turned out to be worse than the other drugs! You are always in our thoughts and prayers. We love you!
Praying, praying, praying. I pray your pain isn't as intense next time sweet friend. You are so brave and a wonderful example to all suffering through chemo. Love and hugs.
Thanks for taking the time to let us know how it is going. I know you must be feeling kinda nasty. I will be praying that the rest of the chemo does not cause this pain for you, honey. I am so sorry you have been suffering so. But, if it DOES get bad again, don't be afraid to take the morphine. You suffered for several days from the pain, and you need to take what helps. Love you!
I was afraid of this...that you were not doing good. I checked in all day and when there was no updates I started praying very hard for you.
Sending gentle {{{{HUGS}}}}
May god be very near to you during this time of pain.
Love you always,
Tina
You poor thing. That does sound very rugged. I pray that you find relief soon and that next time is better, despite the warnings.
Ice really helps with the hives. I had hives when I was pregnant with Justin. On my legs. I nearly went insane from the intensity of the itching. The only thing that brought me relief was a bag of ice cubes held on the offending hive. Shortly after rubbing the ice on the hive, it would go away, then on to the next hive, and so on and so forth. Many late nights spent on my kitchen floor rubbing ice on my legs. I'm sorry to hear you are feeling so bad. Praying harder!!!!
Oh, I am so sorry that you are feeling so much pain and so uncomfortable! I will fervently pray for you and trust God to get you through this next treatment. How lovely to have your daughter with you to celebrate her birthday -- she looks so much like you -- she has your smiling eyes. Dear friend, I pray for you now -- may the Lord bless you and keep you.
Oh, girl, I am so sorry to hear this. I had heard/read that Taxol could cause severe bone pain, but not having taken Taxol myself, I didn't know for sure. And when I didn't see a post from you before now, I was worried that it had done a number on you. I'm so sorry to hear my assumptions were correct. I'm praying that you won't have such experiences with the other treatments.
{{{gentle hugs}}}
I am so sorry. I am thinking about you all of the time, and am continuing to pray.
So sorry to hear about the pain you're in! I'm grateful that the medication seems to work now! ((Great Big Hugs)) from afar!
No wonder you've been on my mind so much. I imagine you are comforted by the fact that there are so many prayers being said on your behalf.
I admire that you are doing as much as you are under the circumstances. With continued prayers~Dawne
So sorry to hear about the trouble you are experiencing, and praying for relief. You are such an inspiration to me and I think of you often! I know we've never met, but it feels like there is a connection to you that is strong . . and knowing you've met some of my relatives is cool.
Hope Anne D.
Cherylyn - Thank you for keeping us updated. You poor thing - I can speak for ALL of us when I say I wish there was something we could do for you to help. Prayers are what we are able to give right now and that's the best, but I wish I could do something earthly as well. Take care of you ~
Praying every day for you, & so glad they found the right combination needed!
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