March 21, 2009
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Itchy Saturday
Itchy? Yes! Terribly itchy! I'm not sure if it's the surgical tape pulling away (which must remain in place until Monday) or the little "wounds" healing and the nerve endings trying to make sense of what was inflicted upon them. It feels like a scab on the knee - the kind we all got when we were young children. As it heals, it starts to itch, and the temptation to pick off the scab is enormous. I'm there - definitely there - enormously desiring to rip off the tape and scratch to my heart's delight. But instead, I just walk around saying intelligent things like: "Itchy! Itchy! Scratchy! Scratchy!" and "Yikey! Yikey! Yikey!" Intelligent verbiage . . . don't you think?! Are those even real words?! LOL
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Jesse went to mow today. More like suck up winter's dead leaves from lawns and then cut the brown grass shorter than short so it will begin to grow back in healthy. I hope he is able to do all he needs to do without being interrupted by rain. There's a light drizzle outside, but no big rains are expected until Monday afternoon/evening. It's overcast outside, but who cares? I've got these on my desk.
Aren't they pretty? My camera doesn't do them justice and the pink against the eggplant colored wall, that my desk is up against, REALLY looks like an appealing color palette. The girls' therapist sent them home with the girls to give to me. I love them!==============
Remember me saying I wanted to vacuum the carpet? Don't be concerned . . . I haven't; but, this is the reason I want to vacuum.
Sushi is a trash eater. That wrapper used to be around some peanut butter cheese crackers. See the little pieces on the floor around her? That's how the whole house looks. Remnants of Sushi's dumpster diving activities! It drives me batty to look at pieces of "things" all over our carpet! The only answer is to vacuum twice a day - NOT!==============
Also, remember me saying the stuff that used to be on top of the high cupboards was encroaching my counter top space? I haven't been able to climb and put it anything back up high, but I have solved the count top problem by moving the decorative plates, bowls, and vase to a different location.
The bare cupboard tops.
All of the "junk" is now on the formal dining room table! Not an ideal spot, but better than cluttering my kitchen counter tops and leaving me no room to prepare food.I easily fixed dinner last night - with Rissy's help. Just hamburger patties, beef flavored rice, and some fresh cauliflower that needed to be used up. I got things going and she finished up. Annamarie cleaned the kitchen. As for the things on the formal table - they'll probably sit there until I can't stand looking at them! Or, until Jesse is able to be home and close by me, while I climb and arrange them on top of the cupboards, again.
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I spent too much time "up" yesterday because of paperwork and phone calls - endless phone calls. I have that breast MRI on Monday, but then they booked me for a bone scan and CAT scan on Wednesday. I spoke with the doctor's (surgeon's) nurse and she was very reassuring (another super nice, understanding person). She told me what she could, based on the little information she had from my previous tests. Her opinion was "absolutely treatable" unless the new pictures from this coming week tell a totally different and surprising story. "Treatable" doesn't make any of the "treatment options" pleasant, nor anything I'm looking forward to, but (whatever the treatment plan) it will be necessary, so what's one to do? You do what you have to do, right???!!!
I believe my biggest desire (and prayer) right now is to put in place the proper help and plan to allow our house to run as smoothly as possible. Most everyone we know works and they aren't available to watch the girls during the day while I have tests run or when I have surgery; nor, is their anyone to teach the girls. Since we school year round, it wouldn't be the worst thing in the world if school had to be put on hold.
An option is to drop 3 subjects - health, science, and history. The girls are a grade beyond what they need to be and so it can certainly be picked up at a later date and no harm will be done. We could continue forward with language and math. AND, Rissy can help the other two with math because she's been out of their book for quite some time. AND, she takes on a "teacher persona" when teaching that's quite different from her bossy-run-the-house persona!
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Speaking of Rissy, I'm kicking myself for letting her play outside for these past few nice days. It's hard to say "no" to her requests to play, but I know how dangerous March is for her. It holds some unknown allergen that makes her sick every year. March was the year (when she was about 5yo) that she was hospitalized and taken by ambulance barely breathing. I know better than to let her go out, but I did because I felt sorry for her, and now she's sick.
Can you tell she doesn't feel well? Bless her heart. She's chilled, talks like Talulah Bankhead (some of you aren't old enough to know her, but she had a very LOW, husky voice) and says her throat is sore and her nose stuffy. So much for her Advair inhaler, Singulaire, and loratadine, which are ALL supposed to suppress her allergic reaction to outdoor pollens, etc.=================
I need to make some sense of my paperwork on my desk. It piles up SOOO quickly. I also need to change things up in the foster children's room, since we won't be doing that. At least I can use those cupboards I cleaned out for all my junk boxes of papers until I feel like doing something organized with the stuff!!! I can also put away the piled up clean blankets, sheets, new pillows, etc.
Rissy needs light blocking drapes in her bedroom. We've had a problem with teens (with too much time on their hands) bothering our neighbors across the street. They are the nicest, Christian people and from India. They've received racial slurs, menacing TP'ing, and other bothersome pranks. The Mr. finally installed a motion sensing light that comes on. It shines like a spotlight in Hollywood (right into Rissy bedroom windows) and I'm fairly certain astronauts in space can see our lighted street from outer space! It's causing Rissy problems sleeping. I got up to let Sushi out this morning (around 5am) and the light came through our foyer window and the glass in our front door like a blinding sunshine setting in the west! I'll have to get a bigger, wider rod and hang it higher than the little rods that hold her see-through lace drapes and just pull shut the light blocking drapes across the double windows at night. She loves her lace curtains and won't like the fabric of the light blocking drapes, but she can open them past the sides of her windows during the day.
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Changing subject here . . . It's been long enough,now, that I can get my incision sites wet today. So, I will enjoy a shower and washing my hair. Need to think about dinner and pull something from the freezer to thaw.
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I laughed at Luci this morning and told her not to move a muscle so I could grab my camera and snap her picture. This is how she slept as a baby and still how she sleeps AND wakes up each morning!
Bottom in the air and *one* hand between her legs and bottom!!! I've never understood how this position could possibly be comfortable, but to her it must be. It's been her posture while resting or sleeping for almost seven years! Thankfully, she wore bloomers to bed and I could take this picture without exposing too much of Luci!=====================
Today's To Do List:
* WRAP ANNAMARIE'S PRESENTS (No! I STILL haven't done that!)
* Plan something for dinner
* Wash hair so that getting ready for church in the morning is less stressful and rushed
* Organize paperwork before it explodes and takes over my desk again!
* Finish reading my book (I'm only a few chapters away!!!!)Be Blessed ~
Comments (7)
Sounds like business as ususal around your house. I will be praying with you for the upcoming days and arrangements that need to be made to keep the house running smoothly or at least with as little interruption as possible. Blessings for your Saturday.
Will be praying for you and the appointments. Love your flowers.
Can you afford to pay a maid who will live in to cook, clean,keep house, and teach the girls when you are down from surgery etc?
That is the way plain people do in Mennonite communities.
If so I could get the word out to some girls I know!
Love and prayers,
Tina
Praying for you, hon. I also messaged you.
btw, in my message, I neglected to mention that I, too, had the CT scan, the bone scan and a MUGA scan (heart scan). honestly, I was more afraid of what they might find in the bone scan than I was about having actual breast cancer! luckily, my bone scan came back clear (except for "arthritic change in the right great toe". What an expensive test to find out I had arthritis in the big toe on the right foot! LOL) After having had fibromyalgia for a very long time, I was so afraid that the bone scan was going to show that my pain all this time had not been fibro, but cancer in the bones. Luckily, that was not the case. The MUGA scan was a baseline scan of the heart, because some chemos can sometimes cause heart damage, and they want a baseline scan to check against in the future, if need be.
Can you lightly pinch or push down the itchy areas with a fingernail? That has helped me with "unscratchable itchies" in the past.
How is all of this working out with your insurance? I probably shouldn't ask, but you know of my concern.
I think you were wise to attempt to be still and calm and not seek out a bunch of information online which might not be relevant anyway. Praying for you helps me to be calmer as well.
Give all the girls and Jesse a squeeze from me~
Lori
@Immax3 -
I quickly rub my flat hand or flat fingertips all over the itchy area - trying to confuse the nerves - until the sensation goes away. I'm sure it's just healing skin drawing up.
Insurance has been phenomenal. As you know - we have no health insurance. They wanted $800/month premium for Jesse & I with a $5000 deductible. BUT, I'm under a cancer grant for what's been done so far, including Monday's MRI. By Wednesday, I should have an ID# for state insurance. Normally that's for people like Nikki or Stephanie who were pregnant w/o insurance. BUT, there is a state stipulation for women my age with ovarian or breast cancers. Yay, Oklahoma!
I am working on possibly having someone (Mennonite or plain community) care for my household and children during the worst part of my treatments. That's just come about today as a viable possibility.
Cheryln, if you can't line up someone to help, PLEASE LET ME KNOW! My Dh's family and extended family all live in the Boley, OK and surrounding areas, and their women and girls are used to going in and helping places with cooking, cleaning etc. Message me if you need help. When I had an emergency C/S with Chad and lots of complications, one of the girls from there came and lived with us in OHIO for about 3 weeks or so and saved our sanity, and probably my health!
Praying for you . . .
What a blessing these girls on Xanga are. I wish I lived nearby, we'd do anything we could to help I pray the ichies go away soon..I know how difficult that is...I think the shower will help. Much love, Jill
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